For over 6 years I have had to spend a lot of time at home. Recovering from operations, recovering from Proton Beam Treatment and most of the time feeling very tired. I haven’t been able to get to school much or see my friends either which has left me with ‘Brain Tumour Boredom’. I have tried everything to keep myself busy. I haven’t been able to do the stuff that most kids my age take for granted. Just hanging out or going to the shops takes too much effort!

My family and I arevery close. We have spent a lot of time together. They cheer me up and make melaugh. We have had a lot of great times. I don’t know what I would do withoutthem.

At the moment I havegot a constant headache that never goes away. I am off school and in the houseall the time. It is a challenge to push myself to do things. All I want to dois stay in bed and not let the world in but I get up and try to keep myself occupiedthe best I can but sometimes I do just need a day in bed and I have learnedthat it is alright to give myself time to rest and recharge.