I have been living with a really bad headache since 16th November 2018. The headache feels like a vice gripping my head and never letting go. It is very painful and hard to cope with because nothing makes it better and I have it from the moment I wake up in the morning until I go to sleep at night. It has become progressively worse and it is now at the top of my pain scale (10/10). The surgeons can’t work out what is causing it because my shunt seems to be working. We have a meeting at hospital this week with one of the surgeons to talk things over and see if there are any treatment options. Apparently there are some patients with hydrocephalus who are left with constant headaches  – I hope I do not end up that way.

 I really can’t do much. I am stuck in my bed or lying on the couch feeling very tired. The headache is very disabling. I am unable to go to school or see my friends. I feel nauseous a lot of the time. I am trying to push through as much as I can but it is tough. Some days I just want to cry. It is not the way a 14 year old girl wants to be living life. It is hard to see all my friends out having fun when I am stuck inside with my headache. Fingers crossed the surgeons come up with a solution soon.